Hey, I'm Xuanfei

Tell us about yourself. A little or a lot, it is up to you. How is this disease affecting you? How are you coping?
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Xuanfei
Posts: 1
Joined: Tue Mar 10, 2020 3:35 pm

Hey, I'm Xuanfei

Post by Xuanfei » Tue Mar 10, 2020 3:43 pm

By the name, you may guess I'm a Chinese. Yes, I come from Shanghai, China.

I'm 42y male. I'm aware of my problem AMN at July, last year. My mobility is not very good now.

I also create a Chinese website for ALD/AMN for Chinese patient.

Nice to find here and let fight with VLCFA.

Thanks & Regards,
Xuanfei

admin
Site Admin
Posts: 17
Joined: Sun Oct 20, 2019 7:31 am

Re: Hey, I'm Xuanfei

Post by admin » Thu Mar 12, 2020 4:19 am

Hello Xuanfei, welcome aboard.

What's your Chinese site? Let me know, I'll add it to the list.

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