Hi, am Dean

Tell us about yourself. A little or a lot, it is up to you. How is this disease affecting you? How are you coping?
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dino
Posts: 3
Joined: Sun Oct 27, 2019 8:57 pm

Hi, am Dean

Post by dino » Sun Oct 27, 2019 11:57 pm

Am Dean. Have a sub-condition of adrenoleukodystrophy, called adrenomyeloneuropathy (AMN).

About me: Am a native, of the state of Oregon. Now live in Colorado. Been married to Colleen, over 17 years. Now 58.

First symptoms were in my latter 30s. Before then, nothing. I mean, zippo.

How is AMN affecting me: First, every case is unique. No one should take my experience as a "guide of what to expect." I walk, with two canes. This is just reality.

Coping: I deal with it. Don't back down. Take cortisol.

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